The Journal of Clinical Ethics · 2011 · 12 citations · 3 references
Public HealthGeneticsPediatricsBioethicsEthicsMedical EthicsClinical EthicsDisability EthicsEthical Issues In End-of-life CareNeonatal EthicsPediatric EthicsReproductive EthicsEthical Issues In Genetic CounselingEthics Of Congenital AnomaliesGrounding Of Moral ObligationNeonatal Surrogate Decision-makingPrenatal Genetic Testing EthicsProfessional Standard Of CareSocietal AcceptanceSocietal Relevance
Identifying ethically allowable options for infants with trisomy 18 has become more challenging as medical standards of practice shift, based on emerging scientific data and changing societal perceptions of disability. Lack of a stable professional standard of practice ought not prevent ethicists from facilitating a consensus; rather, these "unsettled cases" require an individualized, narrative approach that allows the values of the family and the particularities of each case to provide the necessary additional moral grounding.
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