“You Can Carry the Torch Now:” A Qualitative Analysis of Parents’ Experiences Caring for a Child with Trisomy 13 or 18

The Characteristics and Motivations of Online Health Information Seekers: Cross-Sectional Survey and Qualitative Interview Study

John Powell, Nadia Inglis, Jennifer Ronnie et al. · Journal of Medical Internet Research · 2011 · 522 citations · Full text

Social Sciences, Health Behavior, Consumer Health Informatics +10

Genetic Dilemmas and the Child's Right to an Open Future

Dena S. Davis · The Hastings Center Report · 1997 · 291 citations

Life Sciences, Counseling, Genetics +14

The Experience of Families With Children With Trisomy 13 and 18 in Social Networks

Annie Janvier, Barbara Farlow, Benjamin S. Wilfond · PEDIATRICS · 2012 · 244 citations

Public Health, Child Health, Pediatrics +17

Survival of children with trisomy 13 and trisomy 18: A multi‐state population‐based study

Robert E. Meyer, Gang Liu, Suzanne M. Gilboa et al. · American Journal of Medical Genetics Part A · 2015 · 209 citations · Full text

Public Health, Child Health, Pediatrics +17

What to do with stories: the sciences of narrative medicine.

Rita Charon · PubMed · 2007 · 199 citations

Humanities, Clinical Sciences, Clinical Medicine +7