Ethical challenges of community based participatory research: exploring researchers’ experience

Abstract

Community-Based Participatory Research (CBPR) has been proposed as an equitable, empowering partnership approach to collaborative research. International literature about the ethical implications of CBPR suggests a continuing strong interest in the topic. However, there is a notable lack of research that captures the experience of ethical challenges of researchers from different countries who engage in CBPR. The aim of this research was to address this lack of evidence by exploring researchers’ experience of ethical challenges in CBPR at an international level. An innovative data collection method was designed utilising a purpose-built blog. Balancing participant protection and autonomy, partnership tensions, and enduring impacts of the researcher role emerged as the main themes. These findings illustrate the specific conflicts faced by researchers engaged in CBPR. This is largely as a result of the complexities of CBPR coupled with rigid ethics committee review that does not always take into account the more fluid nature of the approach.