Concepedia

Development of the pediatric quality of life inventory neurofibromatosis type 1 module items for children, adolescents and young adults: qualitative methods

Kavitha Nutakki, James W. Varni, Sheila Young Steinbrenner, Claire Burke Draucker, Nancy L. Swigonski

Journal of Neuro-Oncology · 2017 · 23 citations · 41 references

Concepts

MedicineNeurologyPediatricsAdolescent HealthChild DevelopmentPediatric NeurologyNeurodevelopmental AssessmentPediatric Neurologic DisordersNeurofibromatosis Type 1Pediatric Quality Of LifeQualitative InterviewingYoung Adulthood

References

41

The MOS 36-item short-form health survey (SF-36). I. Conceptual framework and item selection.

John E. Ware, Cathy D. Sherbourne · PubMed · 1992 · 34K citations

Pharmacy, Health Sciences, Geriatric Assessment +16

The MOS 36-ltem Short-Form Health Survey (SF-36)

John E. Ware, Cathy D. Sherbourne · Medical Care · 1992 · 29.8K citations

Pharmacy, Health Policy, Geriatric Assessment +16

How Many Interviews Are Enough?

Greg Guest, Arwen Bunce, Laura Johnson · Field Methods · 2005 · 19.4K citations

Social Sciences, Gender Studies, Statistics +16

The PedsQL™: Measurement Model for the Pediatric Quality of Life Inventory

James W. Varni, Michael Seid, Cheryl A. Rode · Medical Care · 1999 · 3.3K citations

Pharmacy, Oncology, Pediatrics +17

Guidance for industry: patient-reported outcome measures: use in medical product development to support labeling claims: draft guidance

Health and Quality of Life Outcomes · 2006 · 2.9K citations · Full text

Pharmacy, Pharmaceutical Policy, Drug Approval Processes +16