Concepedia

Advance care planning in adolescents with cystic fibrosis: A quality improvement project

Traci M. Kazmerski, Daniel J. Weiner, Janice Matisko, Diane Schachner, Whitney Lerch, Carol May, Scott H. Maurer

Pediatric Pulmonology · 2016 · 23 citations · 22 references

Abstract

Adolescents with advanced CF disease felt ACP was a positive experience and not harmful. CF providers valued ACP, but desired more training. Both patients and providers felt that VMC was a useful, disease-appropriate tool. Pediatr Pulmonol. 2016;51:1304-1310. © 2016 Wiley Periodicals, Inc.

References

22

Palliative Care for Children

PEDIATRICS · 2000 · 658 citations

Palliative Care, Family Medicine, Primary Care +10

Risk Factors For Rate of Decline in Forced Expiratory Volume in One Second in Children and Adolescents with Cystic Fibrosis

Michael W. Konstan, Wayne J. Morgan, Steven M. Butler et al. · The Journal of Pediatrics · 2007 · 437 citations

Advanced Lung Disease, Ventilation, Pediatrics +9

End-of-Life Care Preferences of Pediatric Patients With Cancer

Pamela S. Hinds, Donna Drew, Linda L. Oakes et al. · Journal of Clinical Oncology · 2005 · 377 citations

Exacerbation frequency and clinical outcomes in adult patients with cystic fibrosis

Katalin Boér, Katherine L. Vandemheen, Elizabeth Tullis et al. · Thorax · 2011 · 269 citations · Full text

Allowing Adolescents and Young Adults to Plan Their End-of-Life Care

Lori Wiener, Sima Zadeh, Haven Battles et al. · PEDIATRICS · 2012 · 232 citations · Full text