Publication | Open Access

New measures to capture end of life concerns in Huntington disease: Meaning and Purpose and Concern with Death and Dying from HDQLIFE (a patient-reported outcomes measurement system)

Palliative CareLife AssessmentLife ConcernsDisease ProgressionLongevityEnd-of-life CareEnd-of-life IssueHuntington DiseaseNeurologyNeurodegenerationTerminal IllnessMedicineEpidemiologyNew Measures