Discursively Constructing a Family Identity After an Autism Diagnosis: Trials, Tribulations, and Triumphs

Abstract

The present study addressed the question: How are families communicating to construct a family identity in the face of a child's autism diagnosis? Interviews with 19 parents of children, teens, and adults with mild, moderate, and severe autism highlighted the discursive construction of family identity. Findings reveal that families construct an internal family identity that is marked by unified usage of the name "autism," emotive and mundane daily discussions, narratives that serve functional purposes, and normal/structured rituals. Externally, families communicate about autism to outsiders to help others understand, to educate others about autism, to show their loyalty and protection for their family, and to highlight their family's normalcy. These findings illustrate that the discourse-dependent practices are useful not just for constructing membership in families that differ structurally from societal expectations, but also for constructing identity in that face of unique family functioning resulting from a chronic health concern.