Concepedia

Publication | Closed Access

Parameters of Care for Craniosynostosis

DOI

129

Citations

0

References

2011

Year

Joseph G. McCarthy, Stephen M. Warren, Joseph Bernstein, Whitney Burnett, Michael L. Cunningham, Jane C. Edmond, Álvaro A. Figueroa, Kathleen A. Kapp‐Simon, Brian I. Labow, Sally J. Peterson‐Falzone,
The Cleft Palate-Craniofacial Journal

Abstract

To our knowledge, this is the first multidisciplinary effort to develop parameters of care for craniosynostosis. These parameters were designed to help facilitate the development of educational programs for the patient, families, and health-care professionals; stimulate the creation of a national database and registry to promote research, especially in the area of outcome studies; improve credentialing of interdisciplinary craniofacial clinical teams; and improve the availability of health insurance coverage for all individuals with craniosynostosis.