Antenatal thalassaemia carrier testing: women's perceptions of 'information' and 'consent'

Abstract

While information was important to women, consenting was not. Overall, women discussed "information" and "consent" as two separate issues, thus challenging assumptions around the term informed consent. Women wanted pre-test information because they wanted to know more about the tests that they would be having, not to use it to make decisions about whether to have the tests.