The Effectiveness of an Internet Support Forum for Carers of People With Dementia: A Pre-Post Cohort Study

Vicky McKechnie, Chris Barker, Joshua Stott

Journal of Medical Internet Research · 2014 · 123 citations · 34 references

DOIFull text

Open access

Concepts

TL;DR

Informal carers of people with dementia experience significant burden, stress, and health risks, leading to social isolation, anxiety, depression, and increased societal costs, underscoring the need for supportive interventions. This study evaluates the effectiveness of an internet support forum for carers of people with dementia.

Abstract

Background: The well-being of informal carers of people with dementia is an important public health issue. Caring for an elderly relative with dementia may be burdensome and stressful, and can negatively affect the carer's social, family, and professional life. The combination of loss, the physical demands of caregiving, prolonged distress, and biological vulnerabilities of older carers may compromise their physical health, increase social isolation, and increase the risk of anxiety and depressive disorders. Caregiver stress is also linked to negative outcomes for the recipient of care and costs to society, including increased nursing home and hospital admissions. Consequently, carer support interventions are an important component of dementia care. Computer-mediated carer support offers a range of potential advantages compared to traditional face-to-face support groups, including accessibility and the possibility of tailoring to meet individual needs, but there has been little research on its effectiveness so far.

References

34