The HIV Experience: Youth Identified Barriers for Transitioning from Pediatric to Adult Care

TLDR

The study explores the experiences of HIV‑positive youth transitioning from pediatric to adult care, focusing on their need for developmentally appropriate interventions that address loss, disclosure, sexual behavior, and medical needs. Semi‑structured telephone interviews with 59 youth (mean age 22) were used to collect data on transition experiences, demographics, health status, and care needs. Results showed a downward trend in CD4 counts, 45 % found the transition harder than expected, 32 % lacked emotional support, and participants identified gaps in continuity of care, logistics, communication, and individualized management, highlighting that inadequate preparation can jeopardize health.

Abstract

Objective The aim of this study was to explore the experiences of youth living with HIV who transitioned from pediatric to adult care. Methods Semi-structured telephone interviews were conducted with 59 youth (mean age = 22 years) living with HIV about the transition experience, demographics, and health status. Results Of youth who transitioned to adult care, immune function (CD4) trended downward, 45% found the transition more difficult than anticipated, and 32% could not find emotional support services. Youth identified the need for increased continuity of care, assistance with logistics, improved communication with providers and caregivers, and individualized management of their transition process. Conclusion Without adequate preparation, the transition process can be compromised with potentially serious health consequences. Youth living with HIV seek adult providers that can provide developmentally appropriate transition interventions that address loss, disclosure, and sexual behavior along with medical needs.