Using Instagram as a Modified Application of Photovoice for Storytelling and Sharing in Adolescents With Type 1 Diabetes

TLDR

Photovoice enables communities to share images for discussion of key issues, but its use with adolescents has been logistically difficult. The study examined whether Instagram could feasibly serve as a Photovoice platform for adolescents with type 1 diabetes. Twenty 14‑to‑18‑year‑old adolescents posted diabetes‑related photos on Instagram for three weeks, while individual interviews, a focus group, and recruitment/retention metrics were collected. Of 47 invited, 43 % consented and 12 remained active; shared images clustered around diabetes care, humor, and food, and participants universally found the project positive, though technical and personal barriers were noted.

Abstract

Photovoice is a research method developed to help communities share images as a tool for discussion of key issues. Although this may be useful to promote healthy behavior, using Photovoice in adolescents has been logistically challenging. Given adolescents’ engagement in social media, our study explored the feasibility of using a photo-sharing mobile phone application, Instagram, to accomplish the principles of Photovoice. Twenty adolescents 14 to 18 years old with type 1 diabetes were asked to use Instagram to post any diabetes-related photo for 3 weeks. Individual interviews and a focus group were also offered, and recruitment and retention statistics were tracked. Of those approached ( n = 47), 43% agreed to participate. Twelve were actively engaged. Shared photos were most likely to fall into the categories of diabetes care, humor, or food. Engaged participants universally reported the project to be a positive experience; however, there were technological and personal factors to consider for widespread implementation.