Journal of Medical Ethics · 1999 · 112 citations · 16 references
MedicineChild HealthPediatricsEnd-of-life LawPalliative CarePalliative MedicineCare Of Premature InfantsEthical Issues In End-of-life CareNeonatal EthicsPediatric EthicsEnd-of-life Decision-making For ChildrenNeonatal Decision-makingNeonatal End-of-life DecisionsNeonatal Surrogate Decision-makingNeonatal Treatment DecisionsParental ConsentParental Informed ConsentPediatric End-of-life Ethics
Representatives from eight European countries compared the legal, ethical and professional settings within which decision making for neonates takes place. When it comes to limiting treatment there is general agreement across all countries that overly aggressive treatment is to be discouraged. Nevertheless, strong emphasis has been placed on the need for compassionate care even where cure is not possible. Where a child will die irrespective of medical intervention, there is widespread acceptance of the practice of limiting aggressive treatment or alleviating suffering even if death may be hastened as a result. Where the infant could be saved but the future outlook is bleak there is more debate, but only two countries have tested the courts with such cases. When it comes to the active intentional ending of life, the legal position is standard across Europe; it is prohibited. However, recognising those intractable situations where death may be lingering and unpleasant, Dutch paediatricians have reported that they do sometimes assist babies to die with parental consent. Two cases have been tried through the courts and recent official recommendations have set out standards by which such actions may be assessed.
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Robert D. Truog, Allan S. Brett, Joel Frader · New England Journal of Medicine · 1992 · 468 citations
Should the Baby Live? The Problem of Handicapped Infants.
Kathleen Dixon, Helga Kuhse, Peter Singer · Noûs · 1989 · 211 citations
Medical end-of-life decisions made for neonates and infants in the Netherlands
Agnes van der Heide, Paul J. van der Maas, G. Van Der Wal et al. · The Lancet · 1997 · 148 citations · Full text
Medicine, Child Health, Pediatrics +12