Establishing the motivations of patients with dementia and cognitive impairment and their carers in joining a dementia research register (DemReg)

Abstract

There are currently major projects within the United Kingdom to increase the number of patients on dementia registers and to further involvement in dementia research. This study, to the best of our knowledge, is the first to assess the motivations of patients and carers for joining a dementia research register in the United Kingdom, and the findings highlight the importance of altruistic motives.