Research in Nursing & Health · 2011 · 71 citations · 11 references
LawHealth InformaticsHealth CommunicationHealth Information PrivacyMedical EthicsData ProtectionParticipant ConfidentialityParticipant PrivacyPrivacy ProtectionProtected Health InformationRight To PrivacyHuman Subjects OversightParticipant Data RightsPublic-private BoundariesPublic-private CollaborationResearch With Human SubjectsSelf-disclosureSubjects
Nursing and other health sciences researchers increasingly find blogs to be valuable sources of information for investigating illness and other human health experiences. When researchers use blogs as their exclusive data source, they must discern the public/private aspects inherent in the nature of blogs in order to plan for appropriate protection of the bloggers' identities. Approaches to the protection of human subjects are poorly addressed when the human subject is a blogger and the blog is used as an exclusive source of data. Researchers may be assisted to protect human subjects via a decisional framework for assessing a blog author's intended position on the public/private continuum.
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Bonnie Nardi, Diane J. Schiano, Michelle Gumbrecht et al. · Communications of the ACM · 2004 · 968 citations
A Semiotics of the Public/Private Distinction
Susan Gál · differences · 2002 · 457 citations