Journal of the American Medical Informatics Association · 2004 · 59 citations · 9 references
Health ProfessionsBiomedical InformaticsHealth InformaticsClinical InformaticsElectronic Health RecordsHealth Information PrivacyAccess To Medical RecordsDigital Health SystemsElectronic Health Record PrivacyElectronic Health Record SecurityHealth RecordsProtected Health InformationClinical Data Sharing InfrastructureDigital Health RecordsElectronic Health Record DataElectronic Health Record StandardsElectronic Medical RecordsHealth Record AccessPatient-controlled Health RecordsStandardized Clinical Data Elements
Despite progress in creating standardized clinical data models and interapplication protocols, the goal of creating a lifelong health care record remains mired in the pragmatics of interinstitutional competition, concerns about privacy and unnecessary disclosure, and the lack of a nationwide system for authenticating and authorizing access to medical information. The authors describe the architecture of a personally controlled health care record system, PING, that is not institutionally bound, is a free and open source, and meets the policy requirements that the authors have previously identified for health care delivery and population-wide research.
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Role-based access control models
Ravi Sandhu, Edward J. Coyne, H.L. Feinstein et al. · Computer · 1996 · 5.8K citations
Kenneth D. Mandl · BMJ · 2001 · 326 citations · Full text
Physician use of genetic testing for cancer susceptibility: results of a national survey.
Louise Wideroff, Andrew N. Freedman, Lorayn Olson et al. · PubMed · 2003 · 130 citations
Life Sciences, Genetics, Oncology +17