Qualitative Health Research · 2003 · 67 citations · 69 references
MedicineOncologyOncology NursingEnd-of-life CarePalliative CarePalliative OncologyCare PlanningCaregiver SupportEnd-of-life Care PlanningPalliative Care For CancerSupportive Care In CancerSupportive OncologyBalancingCompensating ControlsEnd-of-life Caregiver NeedsGrounded Theory AnalysisHope BalanceInformal CaregiversProblem-solving BehaviorSupportive Cancer Care
In this grounded theory study, the authors interviewed caregivers and patients in end-of-life cancer care and found Balancing to be a fundamental process explaining the problem-solving strategies of most participants and offering a comprehensive perspective on both health care in general and end-of-life cancer care in particular. Balancing stages were Weighing--sensing needs and wishes signaled by patients, gauging them against caregiver resources in diagnosing and care planning; Shifting--breaking bad news, changing care places, and treatments; and Compensating--controlling symptoms, educating and team-working, prioritizing and "stretching" time, innovating care methods, improvising, and maintaining the homeostasis of hope. The Balancing outcome is characterized by Compromising, or "Walking a fine line," at best an optimized situation, at worst a deceit.
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