Palliative Medicine · 1994 · 165 citations · 9 references
Health ProfessionsHospice NursingEthicsPalliative CareResearch EthicsDeath EthicsDying EthicsEnd-of-life Care EthicsEnd-of-life EthicsEthical Issues In End-of-life CarePalliative Care EthicsEthical Research PracticeExperimental MethodologyHuman Subjects Research EthicsResearch With Human SubjectsRights-based PracticeSubjects
Much has been written about the ethics of experimental research upon human subjects, particularly where such subjects can be said to be in a vulnerable position in relation to the researcher. This paper attempts to address such questions with reference to people who are dying. A case is made to defend the view that no research is morally justifiable with this client group. Less extreme views are also explored. One justification for such research activity comes from a rights-based perspective and another from the weighing of benefits and harms. In the process of exploring these issues, the author attempts to demonstrate that no research methodology can be said to be benign.
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The American Journal of Nursing
&NA; · AJN American Journal of Nursing · 1945 · 387 citations
Ethical Principles for Conducting Fieldwork
Joan Cassell · American Anthropologist · 1980 · 83 citations