Qualitative Health Research · 2008 · 152 citations · 24 references
Public AffairsHealth PolicyPublic Health PracticeDisease PreventionEpidemiologyPublic Health PolicyIllness PerceptionPandemic ResponsePublic Health ResponseSocial EpidemiologyStigma ReductionStigmatizationCommunicable Disease BurdenEthnographic Data AnalysisHealth-related StigmaInfectious Disease StigmaMedical EncountersSelf-help ParticipationSocial Support Provision
Understanding disease‑associated stigma is crucial for effective epidemic control and responsive public health policy. This article explores the persistent SARS‑associated stigma among Hong Kong victims, arguing it has not decreased over time and highlighting its implications for public health. Using 16 months of participant observation and semi‑structured interviews in a SARS victims’ self‑help group, the study shows that biomedical encounters, government institutions, and public perception maintain, revive, and reconstruct the stigma.
This article explores the disease-associated stigma attached to the SARS victims in the post-SARS era of Hong Kong. I argue that the SARS-associated stigma did not decrease over time. Based on the ethnographic data obtained from 16 months of participant observation in a SARS victims' self-help group and semistructured interviews, I argue that the SARS-associated stigma was maintained, revived, and reconstructed by the biomedical encounters, government institutions, and public perception. I also provide new insight on how the SARS-associated stigma could create problems for public health development in Hong Kong. As communicable diseases will be a continuing threat for the human society, understanding how the disease-associated stigma affects the outcomes of epidemic control measures will be crucial in developing a more responsive public health policy as well as medical follow-up and social support service to the diseased social groups of future epidemic outbreaks.
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Stigma: Notes on the Management of Spoiled Identity
Postgraduate Medical Journal · 1969 · 14.3K citations · Full text
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Stigma: Notes on the Management of Spoiled Identity.
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