Centres of excellence for the care of people with progressive ataxias

Abstract

The progressive ataxias are a heterogenous group of neurological disorders comprising conditions that result in disturbances of coordinated movements. Ataxia patients can face numerous difficulties in everyday life. A multidisciplinary approach to care is important, including the role of the clinical nurse specialist. Nurses can provide an important link between health and social care professionals involved in a patient's care. Their role includes assessment of daily living and making referrals to appropriate professional support. The development of specialist centres of excellence for the diagnosis and management of people with ataxia can bring important benefits to the management and quality of life of patients.