Palliative Medicine · 2002 · 88 citations · 36 references
Quality Of LifeInformation NeedsCancer ManagementCancer RegistrationCancer EducationGreek Cancer PatientsOncologyPatient-reported OutcomeRadiologyHealth SciencesCancer LiteracyOutcomes ResearchNursingPalliative CarePatient EducationBreast CancerMedicinePatient ExperienceHealth Informatics
This study assessed the information needs of Greek cancer patients and examined whether awareness of diagnosis had any impact on patients. One hundred patients were interviewed about overall and specific information needs, satisfaction, emotional distress, and quality of life. Patients exhibited a great desire for information overall. The need to have more information was high especially regarding the aftermath of chemotherapy, prognosis, how chemotherapy worked, and diagnosis. Patients were more satisfied with care but less satisfied with the information received. Only 37% knew they had cancer, especially the younger, the better educated, and those with breast cancer. Awareness was not related to satisfaction, emotional distress, or quality of life. Our findings suggest that Greek cancer patients need more factual information about their condition and management. Greek oncologists may feel freer to inform their patients about the diagnosis and other issues following their judgement, rather than employing the policy of concealing the truth.
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Information needs of cancer patients in west Scotland: cross sectional survey of patients' views
C. Meredith, Paul Symonds, D. Lamont et al. · BMJ · 1996 · 573 citations · Full text
Breaking Bad News About Cancer: Patients’ Preferences for Communication
Patricia A. Parker, Walter F. Baile, Carl de Moor et al. · Journal of Clinical Oncology · 2001 · 385 citations