International Journal of Geriatric Psychiatry · 2009 · 17 citations · 13 references
MedicineHealth PolicySocial PolicyDementiaGeriatricsGerontologyCaregivingDementia CareDementia CaregivingDementia EpidemiologyQuality Of LifeAlzheimer’s Disease CareDementia Burden Of DiseaseDementia Care Decision-makingDementia Care PolicyImpacts
OBJECTIVES: To generate an internationally applicable framework for the systematic assessment of the quality of life impacts of services and policies for people with dementia and their family carers. DESIGN: A qualitative analysis of text. SETTING: Open groups at six consecutive Alzheimer's Disease International (ADI) Conferences (1999-2005) lasting between 1.5 and 2 h. Data were: presenters' texts, transcribed points made during discussion and written contributions. PARTICIPANTS: Three hundred and twelve contributors of text. RESULTS: From 2246 chunks of text, eight interacting domains relating to quality of life emerged: Public Attitudes and Understanding; Government and Social Policy; Funding for Services; Health; Communication; Choice and Personhood; Environment; and Quality of Care leading to the development of the Stroud/ADI Dementia Quality Framework. CONCLUSIONS: The Stroud/ADI Dementia Quality Framework helps to structure assessment of the quality of life impacts of population level approaches in dementia impacts of population-level approaches in dementia. Information available can be mapped onto the framework. With its international approach, the Stroud/ADI Dementia Quality Framework has validity across cultures within and between countries. It is intended as a useful aid for the assessment of services and policies for people with dementia and their family carers.
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