Journal of Palliative Care · 2006 · 85 citations · 27 references
Social SciencesHuman DevelopmentBereavement CareDevelopmental PsychologyFamily StudiesChildhood BereavementGrief In FamiliesParent-child RelationshipsParental BereavementParentingTraumatic LossFamily Bereavement After Child DeathFamily Bereavement ProcessesLoss Of A ParentOpen-ended InterviewingOpen-ended InterviewsParenting After BereavementPhenomenological InterviewingPhenomenological Interviews
The death of a child has been described as being for parents one of the most traumatic of losses. Nevertheless, information about how parents experience transition through the death trajectory is lacking. This phenomenological study explored parents' lived experienced of transitioning through the death of a child. Twenty-eight bereaved parents (17 mothers, 11 fathers) took part in retrospective, open-ended interviews. Findings showed that, regardless of the time, parents continued to live in a world without closure and, more importantly, did not want to experience closure in their transitioning. To parents, "closure" meant an end to their child in every sense of the word. Their experience of living in a world without closure was supported by four themes: "keeping the memories alive", "being a good parent", "being there at my child's death", and "being there for me after my child dies". Findings yield new insights into how parents live with the death of a child.
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Dignity in the terminally ill: a developing empirical model
Harvey Max Chochinov, Thomas F. Hack, Susan McClement et al. · Social Science & Medicine · 2002 · 727 citations
Dignity-Conserving Care—A New Model for Palliative Care
Harvey Max Chochinov · JAMA · 2002 · 708 citations
Medicine, Oncology, End-of-life Care +12
Bereaved parents’ experience of research participation
Kari Dyregrov · Social Science & Medicine · 2003 · 430 citations