Article Commentary: Patient-Reported Outcomes (PROs) and Patient-Reported Outcome Measures (PROMs)

TLDR

Recent years have seen a growing emphasis on patient‑centered research and care evaluation, with PROs, PROMs, and PREMs emerging as key tools for capturing patients’ health status, quality of life, and satisfaction to guide service improvement. The paper reviews patient involvement in clinical research and service evaluation, summarizing the benefits, limitations, and current trends in PROs, PROMs, PREMs, and PPI initiatives. The authors describe PROs and PROMs, discuss current research trends, and outline PREMs and PPI initiatives for patient inclusion. International attention is growing on using PREMs as a quality indicator of patient care and safety.

Abstract

In recent years, there has been an increased focus on placing patients at the center of health care research and evaluating clinical care in order to improve their experience and ensure that research is both robust and of maximum value for the use of medicinal products, therapy, or health services. This paper provides an overview of patients’ involvement in clinical research and service evaluation along with its benefits and limitations. We describe and discuss patient-reported outcomes (PROs) and patient-reported outcome measures (PROMs), including the trends in current research. Both the patient-reported experiences measures (PREMs) and patient and public involvement (PPI) initiative for including patients in the research processes are also outlined. PROs provide reports from patients about their own health, quality of life, or functional status associated with the health care or treatment they have received. PROMs are tools and/or instruments used to report PROs. Patient report experiences through the use of PREMs, such as satisfaction scales, providing insight into the patients’ experience with their care or a health service. There is increasing international attention regarding the use of PREMS as a quality indicator of patient care and safety. This reflects the ongoing health service commitment of involving patients and the public within the wider context of the development and evaluation of health care service delivery and quality improvement.