Concepedia

Through the looking glass: an exploratory study of the lived experiences and unmet needs of families affected by Von Hippel–Lindau disease

Nadine A. Kasparian, Alison N. Rutstein, Ursula M. Sansom‐Daly, Shab Mireskandari, Janet Tyler, Jessica Duffy, Katherine Tucker

European Journal of Human Genetics · 2014 · 43 citations · 24 references

DOIFull text

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Concepts

References

24

The Hospital Anxiety and Depression Scale

A. S. Zigmond, R. P. Snaith · Acta Psychiatrica Scandinavica · 1983 · 46.6K citations

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Qualitative Data Analysis: An Expanded Sourcebook

Journal of Environmental Psychology · 1994 · 45.6K citations

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Qualitative evaluation and research methods

Michael Quinn Patton · 1990 · 21.8K citations

, , +11

Impact of Event Scale: A Measure of Subjective Stress

Mardi J. Horowitz, Nancy Wilner, William Alvarez · Psychosomatic Medicine · 1979 · 7.9K citations

, , +17

You want to measure coping but your protocol’ too long: Consider the brief cope

Charles S. Carver · International Journal of Behavioral Medicine · 1997 · 7.3K citations

, , +10