Need for overnight respite for primary caregivers of hospice clients

Abstract

A major reason for admission of community hospice clients to the hospital is exhaustion of the primary caregiver. One way to prevent the problem of caregiver exhaustion may be the use of trained laypersons who remain overnight with the ill person, thereby providing respite that allows the caregiver to sleep. A survey was conducted to assess primary caregivers' appraisal of the need for overnight respite and their willingness to receive this support from trained laypersons. Thirty-seven primary caregivers, who used the services of a community hospice, were interviewed to determine primary caregivers' appraisals of problems, resources, and needs. Ten (27%) primary caregivers reported usually receiving 0 to 4 of sleep per night and 27 (73%) reported receiving > 4 h. Sleep time was described by the majority as insufficient, but insufficient, sleep was statistically not a main reason for hospital admission. Findings suggested that those in the 0- to 4-h category were more vulnerable to exhaustion. Seventy percent of respondents indicated that they would use the services of a trained layperson for overnight respite and an additional 6% indicated that they would under certain conditions.