Health effects of caregiving: The caregiver health effects study: An ancillary study of the cardiovascular health study

Richard Schulz, Jason T. Newsom, Maurice B. Mittelmark, Lynda Burton, Calvin H. Hirsch, Sharon Jackson

Annals of Behavioral Medicine · 1997 · 467 citations · 18 references

DOIFull text

Open access

TL;DR

Samples are often recruited through self‑referral and are typically comprised of caregivers experiencing considerable distress. The study examines caregiving health effects in large population‑based samples of spousal caregivers and controls, addressing how sampling strategy and caregiving definitions influence observed outcomes. The authors employed a wide array of objective and self‑report physical and mental health outcome measures in these samples. Applying different caregiving definitions showed that health effects vary substantially, with the largest negative effects among caregivers who feel strained, and that while about 80 % of spouses of disabled partners provide care, only half report mental or physical strain.

Abstract

We propose that two related sources of variability in studies of caregiving health effects contribute to an inconsistent pattern of findings: the sampling strategy used and the definition of what constitutes caregiving. Samples are often recruited through selfreferral and are typically comprised of caregivers experiencing considerable distress. In this study, we examine the health effects of caregiving in large population-based samples of spousal caregivers and controls using a wide array of objective and self-report physical and mental health outcome measures. By applying different definitions of caregiving, we show that the magnitude of health effects attributable to caregiving can vary substantially, with the largest negative health effects observed among caregivers who characterize themselves as being strained. From an epidemiological perspective, our data show that approximately 80% of persons living with a spouse with a disability provide care to their spouse, but only half of care providers report mental or physical strain associated with caregiving.

References

18