Epilepsia · 1999 · 78 citations · 15 references
HumanitiesReligionReligious StudiesEpilepsyMedical AnthropologyMysticismAfrican ReligionsEtiology Of EpilepsyAncestor SpiritsDivine Punishment MythStigma In Epilepsy
Epilepsy is viewed across cultures as a sacred or demoniac affliction, evoking fear, shame, and mystical beliefs, and is often attributed to ancestral spirits, witchcraft, or divine punishment. The study involved establishing the Mahenge Clinic for Epilepsy in Tanzania in 1960 and conducting related research across Africa. Epilepsy is perceived as a supernatural African affliction that hampers access to modern care, but sustained health education and organized treatment can shift beliefs and markedly improve patients’ quality of life.
Summary: Epilepsy when manifested as grand mal seizure provokes strong and ambivalent feelings in those witnessing it. Terms such as morbus sacer , denoting both a sacred and demoniac condition, or folk names indicating divine punishment, have expressed these feelings in European societies from antiquity to the Middle Ages and beyond. An atmosphere of fear, shame and mysticism surrounds epilepsy even in our days in many non‐Western and also in Western cultures. In the course of work and studies in Tanzania, where I organized the Mahenge Clinic for Epilepsy in 1960, and in other parts of Africa. I found that epilepsy is conceived of as an “African” affliction, a manifestation of supernatural forces that makes it difficult to reach epilepsy sufferers with modern medical treatment. Epilepsy is traditionally looked on as caused by ancestral spirits or attributed to possession by evil spirits. It is also thought to be due to witchcraft, and “poisoning,” and often taken to be contagious. Epilepsy may, under Christian missionary teaching, have come to be considered as due to demoniac possession or divine punishment for sins, in accordance with biblical examples. In many parts of Africa, syncretic amalgamation of indigenous traditions with Judeo—Christian doctrines influenced popular attitudes toward epilepsy. We demonstrated that persistent efforts at health education in the context of organized treatment of epilepsy can result in a change of popular notions about epilepsy and consequently lead to significant improvement in the quality of life of epilepsy sufferers.
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Ilza Veith · Archives of General Psychiatry · 1965 · 315 citations
The social course of epilepsy: Chronic illness as social experience in interior China
Arthur Kleinman, Wenzhi Wang, Shi-Chuo Li et al. · Social Science & Medicine · 1995 · 230 citations
Prevalence and Incidence of Epilepsy in Ulanga, a Rural Tanzanian District: A Community‐Based Study
H. T. Rwiza, Gad Kilonzo, J O Haule et al. · Epilepsia · 1992 · 227 citations
Medicine, Neurology, Psychiatry +11