Acta Paediatrica · 2006 · 29 citations · 22 references
Social SciencesCardiologyPsychologyChild DevelopmentDevelopmental PsychologySocial-emotional DevelopmentHealth-related Quality Of LifeHealth-related Quality Of Life MeasurementParent-child RelationshipsPsychological Well-beingQuality Of LifeQuality Of Life AssessmentChild Well-being AssessmentFamily Socioeconomic StatusHousehold Socioeconomic StatusLong-term Quality Of LifePediatric Quality Of LifePsychosocial Well-beingQuality Of Life ImpairmentWell-being Of The Child
AIM: To measure quality of life in children with hypoplastic left heart syndrome and their families. METHODS: A questionnaire exploring socioeconomic status, structure and function of networks and psychological well-being was completed by the families of all 18 patients older than 2 years (age range 2.7-10.6). The results were compared with those of 180 healthy Swedish children matched for age and sex. RESULTS: There were no significant differences between the groups in any of the aspects of socioeconomic status. Study group parents had not more available time for their child (p < 0.05) and more separations/divorces (p < 0.01). The patients had lower self-esteem (p < 0.05), more psychosomatic symptoms (p < 0.01) [corrected] and lower peer acceptance (p < 0.01) than control children. CONCLUSION: With regard to psychological well-being, quality of life was significantly lower in children with hypoplastic left heart syndrome than in healthy controls.
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A Critical Appraisal of the Quality of Quality-of-Life Measurements
Thomas M. Gill · JAMA · 1994 · 2.1K citations
The Hypoplastic Left Heart Syndrome
Jacqueline A. Noonan, Alexander S. Nadas · Pediatric Clinics of North America · 1958 · 413 citations