Social Challenges for Children With Hemophilia: Child and Parent Perspectives

Abstract

The impact of pediatric chronic illness on peer relations and social adjustment in nine school-aged boys with hemophilia was examined using qualitative interview methods. Literature on boys' psychosocial development provided a theoretical perspective to interpret findings. Three main themes emerged from the interviews: Awareness of difference, efforts to conceal difference, and efforts to connect with peers and friends. Findings suggest that hemophilia may be a socially stigmatizing condition for many boys because it limits gender-typical interactions with same-sex peers. Recommendations are offered for research on interventions to assist children in communicating with peers about their health condition and to involve close friends and parents in such interventions.