Concepedia

National Organization for Rare Disorders

NO

150

Publications

2.7K

Citations

6

Authors

Danbury

United States

Other names

NORD

National Organization for Rare Disorders is a nonprofit institution in Danbury, United States known for medicine, rare diseases, and health policy.

Homepage Wikipedia ROR

Top concepts

MedicineRare DiseasesHealth InformaticsHealth PolicyPublic HealthTranslational ResearchHealth Services ResearchArtsJournalismEngineering

Publications

150

Clinical research for rare disease: Opportunities, challenges, and solutions

Robert C. Griggs, Mark L. Batshaw, Mary Dunkle et al. · Molecular Genetics and Metabolism · 2008 · 390 citations · Full text

Clinical Population, Clinical Studies, Clinical Trials +3

From adaptive licensing to adaptive pathways: Delivering a flexible life‐span approach to bring new drugs to patients

H‐G Eichler, LG Baird, Richard Barker et al. · Clinical Pharmacology & Therapeutics · 2015 · 184 citations · Full text

The National Organization for Rare Disorders (NORD)

Stefanie Putkowski · NASN School Nurse · 2009 · 180 citations

Rare Diseases, National Organization, Prevalence +3

The need for worldwide policy and action plans for rare diseases

John Forman, Domenica Taruscio, Virginia A. Llera et al. · Acta Paediatrica · 2012 · 100 citations · Full text

Quantum of Effectiveness Evidence in FDA’s Approval of Orphan Drugs

Frank J. Sasinowski · Drug Information Journal · 2012 · 54 citations

Substance Abuse, Regulatory Approval, Health Policy +6

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Authors

6

	Publications	Citations	H-Index
PL Peter L. Saltonstall National Organization for Rare Disorders	10	104	4
MD Mary Dunkle National Organization for Rare Disorders	7	488	4
PG Pamela Gavin National Organization for Rare Disorders	4	171	4
AK Alyssa Kania National Organization for Rare Disorders	4	54	2
SP Stefanie Putkowski National Organization for Rare Disorders	2	181	1

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