National Tay-Sachs and Allied Diseases Association

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Publications

Citations

270

Authors

Location

Boston, United States

Also known as NTSAD

National Tay-Sachs and Allied Diseases Association is a nonprofit institution in Boston, United States known for medicine, neurology, and clinical pharmacology.

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MedicineNeurologyPharmacologyClinical PharmacologyNeurodegenerative DiseasesNeurodegenerative DisordersAdvocacyPediatricsHealth PolicyClinical Trials

Publications

Natural History of Infantile GM2 Gangliosidosis

Annette Bley, Ourania Giannikopoulos, Doug Hayden et al. · PEDIATRICS · 2011 · 167 citations · Full text

Medicine, Neurology, Pediatrics +16

Principles for interactions with biopharmaceutical companies: the development of guidelines for patient advocacy organizations in the field of rare diseases

Susan M. Stein, Elizabeth Bogard, Nicole Boice et al. · Orphanet Journal of Rare Diseases · 2018 · 44 citations · Full text

Medicine, Health Policy, Pharmacology +9

A master protocol to investigate a novel therapy acetyl-l-leucine for three ultra-rare neurodegenerative diseases: Niemann-Pick type C, the GM2 gangliosidoses, and ataxia telangiectasia

Taylor Fields, Marc C. Patterson, Tatiana Brémovà-Ertl et al. · Trials · 2021 · 39 citations · Full text

Medicine, Neurology, Pharmacology +17

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Authors

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Ourania Giannikopoulos
National Tay-Sachs and Allied Diseases Association, United States
5 publications · 167 citations
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