Updated International Tuberous Sclerosis Complex Diagnostic Criteria and Surveillance and Management Recommendations

Hope Northrup, Mary E. Aronow, E. Martina Bebin, +104

Pediatric Neurology

International consensus recommendations for the identification and treatment of tuberous sclerosis complex-associated neuropsychiatric disorders (TAND)

Petrus J. de Vries, Tosca-Marie Heunis, Stephanie Vanclooster, +21

Journal of Neurodevelopmental Disorders

The research landscape of tuberous sclerosis complex–associated neuropsychiatric disorders (TAND)—a comprehensive scoping review

Stephanie Vanclooster, Stacey Bissell, Agnies M. van Eeghen, +22

Journal of Neurodevelopmental Disorders

Beyond the Guidelines: How We Can Improve Healthcare for People With Tuberous Sclerosis Complex Around the World

Clare Stuart, Carla Fladrowski, Jennifer Flinn, +4

Pediatric Neurology

Empowering Families Through Technology: A Mobile-Health Project to Reduce the TAND Identification and Treatment Gap (TANDem)

Tosca-Marie Heunis, Stacey Bissell, Anna W. Byars, +21

Frontiers in Psychiatry

Development and Feasibility of the Self-Report Quantified Tuberous Sclerosis Complex-Associated Neuropsychiatric Disorders Checklist (TAND-SQ)

Tosca-Marie Heunis, Nola Chambers, Stephanie Vanclooster, +22

Pediatric Neurology

Characterization and management of facial angiofibroma related to tuberous sclerosis complex in the United States: retrospective analysis of the natural history database

Sreedevi Boggarapu, Steven L. Roberds, JoAnne Nakagawa, +1

Orphanet Journal of Rare Diseases