Hemophilia Federation of America

WFH: Closing the global gap – achieving optimal care

Mark W. Skinner · Haemophilia · 2012 · 103 citations

Medicine, Health Policy, Hematology +12

Core data set on safety, efficacy, and durability of hemophilia gene therapy for a global registry: Communication from the SSC of the ISTH

Barbara A. Konkle, Glen Pierce, Donna Coffin et al. · Journal of Thrombosis and Haemostasis · 2020 · 48 citations · Full text

Medicine, Hematology, Translational Sciences +13

Impact of hemophilia B on quality of life in affected men, women, and caregivers—Assessment of patient‐reported outcomes in the B‐<scp>HERO</scp>‐S study

Tyler W. Buckner, Michelle Witkop, Christine Guelcher et al. · European Journal Of Haematology · 2018 · 42 citations · Full text

Pharmacy, Child Health, Hematology +17

Impact of mild to severe hemophilia on education and work by <scp>US</scp> men, women, and caregivers of children with hemophilia B: The Bridging Hemophilia B Experiences, Results and Opportunities into Solutions (B‐HERO‐S) study

Susan Cutter, Don Molter, Spencer Dunn et al. · European Journal Of Haematology · 2017 · 33 citations · Full text

Social Sciences, Health Education, Hematology +13

Disclosing genetic risk for Alzheimer's dementia to individuals with mild cognitive impairment

Kurt D. Christensen, Jason Karlawish, J. Scott Roberts et al. · Alzheimer s & Dementia Translational Research & Clinical Interventions · 2020 · 32 citations · Full text

Medicine, Genetics, Psychology +17