Mark Larkin

Patient- and Caregiver-Reported Burden of Transfusion-Dependent β-Thalassemia Measured Using a Digital Application

Clark Paramore, Laurice Levine, Emma Bagshaw et al. · Patient · 2020 · 51 citations · Full text

Pharmacy, Health Sciences, Hematology +17

Patient-reported burden of myasthenia gravis: baseline results of the international prospective, observational, longitudinal real-world digital study MyRealWorld-MG

Sarah Dewilde, Glenn Philips, Sandra Paci et al. · BMJ Open · 2023 · 49 citations · Full text

Medicine, Internal Medicine, Psychiatry +17

Patient-reported impact of myasthenia gravis in the real world: protocol for a digital observational study (MyRealWorld MG)

Sonia Berrih‐Aknin, Kristl G. Claeys, Nancy Law et al. · BMJ Open · 2021 · 18 citations · Full text

Medicine, Health Sciences, Internal Medicine +16

Patient-Reported Symptom Burden of Charcot–Marie–Tooth Disease Type 1A: Findings From an Observational Digital Lifestyle Study

Florian P. Thomas, Mario Saporta, Shahram Attarian et al. · Journal of Clinical Neuromuscular Disease · 2022 · 11 citations · Full text

Pharmacy, Rehabilitation Medicine, Pain Management +16